I've been away for a while, but I wanted to share that I submitted an essay for the NSDAR's Women's Issues Essay Contest and I won my state, division and National for 2013! My prize is the exclusive bragging rights!
This essay embodies everything I've been feeling for the past few years and I hope that those of you reading it have a better understanding of what it is like to advocate for a loved one suffering from severe mental illness. It is humbling when you find out exactly what you can and can't do to help. I hope those without first hand knowledge find this informative and those who know the process can see that you aren't alone in the fight. Hopefully combined we can make enough noise to make real change in this country.
I wish the stigma of mental illness would no longer prevent society and our elected officials from acting. It's a complex and difficult situation with no clear cut solution. But maybe if enough of us tell our stories we can change minds and improve mental health care. I can't imagine it getting worse, but I've been surprised before.
So, without further adieu...
The Need for Mental Health Care
Mental illness affects one in four adults and one in ten children in the United States
according to the National Alliance on Mental Illness (NAMI). Money, lineage,
intelligence or social status is no protection from it. It doesn’t care who you are or who
you know. But it is often an ignored illness. If a person arrives at an emergency room
with chest pains she will most likely receive life-preserving medical treatment regardless
of ability to pay. If the same person arrives at the hospital in a mental health crisis state
she is at the mercy of what programs are available. Often a patient has to wait hours,
days or weeks for an open bed or all too often leaves without receiving care because none
is available. Often if that patient has insurance the issue can be compounded by
insurance networks. If services are available those who suffer from mental illness often
experience the humiliation of being shackled for safety and are taken to a facility where
their family members cannot check on them. Far worse is the secrecy attached to
receiving mental health care. No one wants to discuss it. It must be kept private. So,
family members who wish to help are effectively rendered impotent and caught in an
endless loop of “we can neither confirm nor deny your loved one’s presence in our
facility.” This leads to dangerous lack of oversight and threatens quality and continuity
of care. Privacy concerns cause those who suffer from the grip of mental illness to stay
sick far longer than is necessary or humane. Imagine walking into a hospital unable to
speak for yourself and the treating medical staff refusing to even verify your drug
allergies or the names of your outpatient physicians with your family. In any other
medical field it would clearly be malpractice on the part of the medical staff. In mental
health facilities it’s standard procedure.
I have experienced the horror that is the mental health system because my mother is that
one in four.
My mother is incredibly smart. She is articulate and is the most creative woman I know.
Her paintings contained the most beautiful lines and colors. I often wonder how she
would have changed the world for the better if her mind hadn't betrayed her.
My childhood was anything but dull. I can’t say for sure when I knew what exactly she
was suffering from. She was a full time mom, but during my elementary school years she
was rarely able to get herself out of bed. Those times were book ended by times of
frantic shopping for nothing in particular or excessive arguments with family members.
By the time I was ten or so I remember her telling stories about being followed and that
someone was trying to kill my father so they could use the insurance money to build a
church. She believed she had secrets that she could be persecuted for if she let them be
known. Life was both terrifying and confusing. In some ways I’m surprised that my four
siblings and I survived childhood at all.
As each of us grew up and began taking high school and college psychology courses we
each started to understand. She was mentally ill, but it would be decades before her
illness was fully clarified.She suffers from the difficult disease known as Schizoaffective Disorder Bipolar Type. It is a combination of Schizophrenia and Bipolar Disorder. The two competing diseases
make treating the condition a delicate balance. One that has taken a long time to stabilize
as they fuel each other just when it seems one is under control. Those times of control
are unfortunately fleeting.
My mother managed to avoid being treated for most of her life by making sound life
choices that protected her, until they no longer could. It was in her 50s when she was
unable to function with other people or on her own anymore. As with most patients she
used medications with success for a few years, but discontinued them because she felt she
wasn't herself on the drugs.
In her 60s she suffered a series of involuntary commitment stays in mental health
facilities. As her family we were often blamed for not forcing her to get help, but the
reality of the situation was that there was nothing we could do legally. Any time we tried
we put ourselves at risk for violating her freedom. We were threatened with being
charged with trespassing when any of us tried to check in on her. My brother worried
that if he were to be arrested while trying to help her he might lose his government
clearance and his job.
Because of privacy concerns we were not allowed to speak with the nurses or doctors in
charge of her care during inpatient stays. Any information we received had to be given in
a sort of code. Receptionists could tell us a time frame when hearings “might” be held.
If we arrived in time we were invited in to give our account of the state of her health, but
shut out again at the end of the hearing. During one hospital stay a Social Worker took
pity on us and allowed a “hypothetically speaking” conversation with him. He was the
only one to help us during those first few hospitalizations and he let is slip once that he’d
never met another patient who was so articulate that she made him believe her.
We felt hopeless. Hospitalizations were painfully short. The medications rarely hit her
blood stream before discharge. Often a court order would be obtained to force her into
taking medicine, but after a few doses she would be released with “mandatory” outpatient
care. “Mandatory,” meaning that she had to promise to go, but there were no
consequences if she chose not to go. So she didn’t. We tried to inform the medical staff
of important details of her mental state, but the only avenue was writing long letters to
the physicians, dropping them off at the front desk and praying it made it to someone
who would read it and act appropriately. We were putting our mother’s life in the hands
of the written word.
Eventually things got worse. For me, it was like watching a car drive slowly off a bridge.
You can’t stop its forward progression, but you can’t take your eyes off the tragedy
unfolding. It was only when my mother attempted to take four children from a bus stop
across the street from her home that we were able to convince her she had to consent to
treatment or face jail time. This was the first time I had to witness her being shackled by
police after waiting eighteen hours for placement in a facility. That time was mostly spent
attempting to hold her back from attacking the medical staff because they quickly became incorporated into her delusions. What I hated most about that day is that I missed my
daughter’s Kindergarten graduation to be there for my mom. And my mother hated me
for it.
A year later I was preparing a petition to sue for Guardianship and Conservatorship. The
legal process was fairly easy. The emotional process was not. Standing in front of a
judge I had to attest that she was so incapable of making decisions that he needed to
revoke her right to vote, the privilege of driving a car, handle her own money, decide
where to live or what medical treatment she should receive. I went through the whole
process without the benefit of a lawyer representing me because any penny spent was a
penny less to help pay for her medical care.
I’ve been her Guardian and Conservator for nineteen months now. Her health is
stabilizing, but that hasn’t been easy. After several hospitalizations she’s finally out of
constant crisis mode. However, because cheap drugs were used before she became
eligible for Medicare she suffers from permanent Parkinson’s Disease-like symptoms.
This is known as the condition called Tardive Dyskinesia. The use of Haldol is common
in psychiatric patients, but 60% of users develop this condition according to NAMI. The
overwhelming majority are women.
My mother is 66 and can no longer bathe herself or be trusted to walk out of her Assisted
Living Facility unaccompanied. When I look back and think of how she was still able to
drive a car only 2 years ago I weep. The medication makes it difficult for her to do basic
daily living activities. Without the medication she is a danger to herself and others. I
live with a constant internal battle. If I hadn’t filled her medications and demanded she
take them she wouldn’t be as physically sick and she is now. If I hadn’t filled the
prescriptions then she might have hurt herself, someone else or died during a psychotic
episode. There were simply no good choices, but I hate myself for being the cause of her
present difficulties.
I’ve spent the last several years trying to find someone to listen. I’ve contacted reporters,
elected officials, Social Services, advocacy groups and many departments in the Virginia
Government with little success. Mental Health isn’t a priority. Even as the mass shooting
happened at Virginia Tech in 2006 then Governor Tim Kaine cut funding for mental
health services, ensuring shorter hospital stays and more going without needed mental
health care. How different would things have been if funding had been in place to keep
the gunman in the hospital just a little longer to ensure he was stable before discharge?
So often it seems the public at large dismisses mental health issues as the result of lack of
moral character or bad parenting and other excuses that let society at large pass the
responsibility to the person who cannot care for herself. A mentally ill person does not not
choose to be sick any more than a person chooses to suffer from cancer, broken bones or
infections.
My mother and so many like her deserve better.
Showing posts with label Mental Health Care. Show all posts
Showing posts with label Mental Health Care. Show all posts
Wednesday, August 14, 2013
Thursday, May 10, 2012
Newsflash!
I have something to tell the world that I think will both shock and awe. I think you will find that I've figured out the impossible.
Someone who is actively having delusions and is hearing voices or seeing people who aren't real don't know that those voices or people aren't real!
I've said it! The cat's out of the bag! You can bask in my greatness now.
I can't tell you how many people over the past several weeks have asked my mother if she is hearing voices or seeing people who aren't real. When she says no they will often proclaim to me she isn't hearing voices or seeing people who aren't real and she is perfectly fine. Of course I ask her things like "did you talk to Will today?" and she readily admits she's talking with him regularly (see this post introducing Will if you don't know who he is). So they bury her illness in semantics. A few of these people are doctors, nurses and social workers working in the mental health care field and really should know better. I'm guessing they just don't want to see it. This is why it is so important for family members to be there as much as they can for their loved one. I know it's not possible for every family, but if no one is there to advocate people fail to get the care they desperately need because of sentence structure and word choice (good communication saves lives, people!).
The sad part is that those technicalities are there because there are so few funds available those working in the mental health field have to weed out people who are not in an absolute crisis "I'm going to kill myself or others" state. Those who need inpatient care, but aren't seconds away from ending someone's life fall by the wayside. And they get sicker and sicker until they finally end up in that state. Then they can get help, but often it's too late. And you waste a lot of resources that wouldn't have been needed had the person received help much earlier.
It's all about trying to cut down on inpatient services in favor of community based services without actually making sure those community based services are adequate for the population it serves. Not all treatment can happen on an outpatient basis and our ERs are quickly becoming a slow moving weigh station for many people who need help with substance abuse and mental health care. If you really think about it, who do you want to receive the best care: the guy with a clogged artery or the guy with schizophrenia and a gun rack? In reality the guy with the clogged artery will receive the care while the schizophrenic will be sent home and we all know how that turns out.
Today my mother had an appointment with a Neurologist to find some answers about her constant tremors. Bottom line: they are caused by the psyche medication she's been on in the past (and possibly present) and it is permanent. She has Medication Induced Parkinsonism. The doctor told me a person could take these drugs for a short time and then nothing for 30 years and still develop this. And when I think of all those times I took my mom to the doctor for her Haldol shot or filled her Trilafon script or filled her medication dispensers I hate myself. I know on an intellectual level it isn't my fault. I was trying to help and I wasn't the one making the medical decisions. But still...
Last week my mom visited with her psychiatrist and was telling him all about how her psyche nurse was discussing my care with her and I didn't like it so I put my mom in the hospital. The doctor asked her if I was his patient and she said I was. The sad part is, if all that were true I would be the last to know.
Someone who is actively having delusions and is hearing voices or seeing people who aren't real don't know that those voices or people aren't real!
I've said it! The cat's out of the bag! You can bask in my greatness now.
I can't tell you how many people over the past several weeks have asked my mother if she is hearing voices or seeing people who aren't real. When she says no they will often proclaim to me she isn't hearing voices or seeing people who aren't real and she is perfectly fine. Of course I ask her things like "did you talk to Will today?" and she readily admits she's talking with him regularly (see this post introducing Will if you don't know who he is). So they bury her illness in semantics. A few of these people are doctors, nurses and social workers working in the mental health care field and really should know better. I'm guessing they just don't want to see it. This is why it is so important for family members to be there as much as they can for their loved one. I know it's not possible for every family, but if no one is there to advocate people fail to get the care they desperately need because of sentence structure and word choice (good communication saves lives, people!).
The sad part is that those technicalities are there because there are so few funds available those working in the mental health field have to weed out people who are not in an absolute crisis "I'm going to kill myself or others" state. Those who need inpatient care, but aren't seconds away from ending someone's life fall by the wayside. And they get sicker and sicker until they finally end up in that state. Then they can get help, but often it's too late. And you waste a lot of resources that wouldn't have been needed had the person received help much earlier.
It's all about trying to cut down on inpatient services in favor of community based services without actually making sure those community based services are adequate for the population it serves. Not all treatment can happen on an outpatient basis and our ERs are quickly becoming a slow moving weigh station for many people who need help with substance abuse and mental health care. If you really think about it, who do you want to receive the best care: the guy with a clogged artery or the guy with schizophrenia and a gun rack? In reality the guy with the clogged artery will receive the care while the schizophrenic will be sent home and we all know how that turns out.
Today my mother had an appointment with a Neurologist to find some answers about her constant tremors. Bottom line: they are caused by the psyche medication she's been on in the past (and possibly present) and it is permanent. She has Medication Induced Parkinsonism. The doctor told me a person could take these drugs for a short time and then nothing for 30 years and still develop this. And when I think of all those times I took my mom to the doctor for her Haldol shot or filled her Trilafon script or filled her medication dispensers I hate myself. I know on an intellectual level it isn't my fault. I was trying to help and I wasn't the one making the medical decisions. But still...
Last week my mom visited with her psychiatrist and was telling him all about how her psyche nurse was discussing my care with her and I didn't like it so I put my mom in the hospital. The doctor asked her if I was his patient and she said I was. The sad part is, if all that were true I would be the last to know.
Monday, April 23, 2012
Do You Hear That Cracking Sound...
I think I'm about at my wits end with all this work. It just seems like the more I get done the more I have left to do. I wish I had known how much work this all would be when I filed the petition. I probably would have done it anyway since that's what you do for family. Still it would have nice to be a bit prepared for all of this.
To back track for you all who don't know me in real life (or Facebook life) my mother was able to be placed on the Gero Psyche ward on Friday afternoon. It was such a huge relief that she wasn't going to spend the weekend in the ER waiting for placement on Monday. I spent Friday evening sleeping off the horrible allergy headache I developed and then went to mom's house to paint for 8 hours, alone. I instructed my husband, who had a rare day off, to take the kids to as many fun things as possible. They went go-karting, bowling and had pizza for dinner. I'm glad they were able to get so many fun things done in one day, but a huge part of me really wanted to do it all with them. It seems really unfair that my family is the one who has to make the sacrifices to get my mom's work done. But it has to be done. The sooner the house is on the market the sooner my kids get their mom back.
I spent today visiting briefly with my mom, taking paperwork to her social worker and taking 3 trips back and forth between the court and the bank in an attempt to get the quitclaim deed signed, notarized and submitted. I was not successful in my attempts. Tomorrow I have to be at the hospital at 8am for mom's Temporary Detainment Order Hearing (TDO). The doctor expects her to stay till Friday. However the social worker said that was because my mother wasn't hearing any voices. I spent about 15 minutes talking with my mom (okay talking TO my mom) and she mentioned her friend "Will" admitted to her he was trying to hurt her and he wasn't "of God" and practiced witchcraft. If you remember from previous posts he is her new imaginary friend who advises her on living choices. She's clearly hearing voices. And for a good portion of our visit she blankly stared. I had to shake her arm a few times before she resumed talking.
There's some things that you just wish you could unsee.
So tomorrow I will wait for the hearing. I'll be skipping my doctor's appointment that I desperately need for my worsening asthma so I can be there for her. I think I've crossed the line between trying to help and sending myself to an early grave.
Wednesday, April 18, 2012
Now if Only I Could Predict the Lotto...
Remember my post last month? The one where I said if things don't change mom will be back in the hospital in two months? I wrote that blog post on March 21st. Today is April 18th. I guess I was off by a month. I've been frantically trying to get her house ready for sale so I could devote the time she needed from me for a hospital stay, since I predicted it happening sometime in May. So, this will probably slow things down a bit, but here's hoping other family members pick up the slack enough that I won't fall too far behind.
My mom's delusions have become a bit more vivid recently. She has a new imaginary friend, Will, that I introduced you to last time. She's been shaking less, but I was really thinking things were staying the same. She started having a Psyche Nurse visit her a few weeks ago. I was hoping this would be what would help keep her out of the hospital. Clearly that was false hope.
Today I got a call from the Psyche Nurse who had been called in to evaluate her today by the facility (I'm not sure why they called her since they should have called me first, but whatever. It's not like I'm her Guardian. Oh wait. I am.). When the nurse was on the phone she told me about mom's most recent delusion and it's become a bit more....elaborate. Now Will is Satan and mom's being attacked by him. The poor nurse sounded very shaken up by the whole experience. I hope she doesn't end up with PTSD over the situation. I mentioned that I was expecting a hospitalization soon if things didn't improve and she indicated to me that we are at that point. The doctor could do med changes, but since she doesn't have anyone that can watch her closely (her ALS does not provide this service) then that could do more harm than good.
So I contacted her doctor who agreed hospitalization was the best choice at the moment. Tomorrow morning I'll take her back to Norfolk General and pray there's a Gero Psyche bed available. Since there are only 6 in the entire Hampton Roads Area (Wikipedia lists the area as having 1.6 million people so only 6 people over the age of 50 can have any kind of mental issue at any given time. Good luck with that HR), there isn't much chance of a bed being open. I'm worried we'll be in the ER till Monday.
So if you are a praying person please pray for health, skill and a slow day in the ER. I'll take chants, vibes, quirky memes or anything else that could possibly help.
Oh and if anyone knows any politician at all please smack him or her over the head and tell them to get to work! Or send me his/her personal cell number. I'll put my mom on the phone.
My mom's delusions have become a bit more vivid recently. She has a new imaginary friend, Will, that I introduced you to last time. She's been shaking less, but I was really thinking things were staying the same. She started having a Psyche Nurse visit her a few weeks ago. I was hoping this would be what would help keep her out of the hospital. Clearly that was false hope.
Today I got a call from the Psyche Nurse who had been called in to evaluate her today by the facility (I'm not sure why they called her since they should have called me first, but whatever. It's not like I'm her Guardian. Oh wait. I am.). When the nurse was on the phone she told me about mom's most recent delusion and it's become a bit more....elaborate. Now Will is Satan and mom's being attacked by him. The poor nurse sounded very shaken up by the whole experience. I hope she doesn't end up with PTSD over the situation. I mentioned that I was expecting a hospitalization soon if things didn't improve and she indicated to me that we are at that point. The doctor could do med changes, but since she doesn't have anyone that can watch her closely (her ALS does not provide this service) then that could do more harm than good.
So I contacted her doctor who agreed hospitalization was the best choice at the moment. Tomorrow morning I'll take her back to Norfolk General and pray there's a Gero Psyche bed available. Since there are only 6 in the entire Hampton Roads Area (Wikipedia lists the area as having 1.6 million people so only 6 people over the age of 50 can have any kind of mental issue at any given time. Good luck with that HR), there isn't much chance of a bed being open. I'm worried we'll be in the ER till Monday.
So if you are a praying person please pray for health, skill and a slow day in the ER. I'll take chants, vibes, quirky memes or anything else that could possibly help.
Oh and if anyone knows any politician at all please smack him or her over the head and tell them to get to work! Or send me his/her personal cell number. I'll put my mom on the phone.
Saturday, December 31, 2011
Goodbye 2011! Don't let the door hit you in the butt on your way out!
This is probably the best time of year for me. The business of Christmas is over with and we ready to put the troubles of the past year behind us and move into the New Year. Although I am expecting this next year to copy the past two years I will try to remain hopeful that things will change. Without hope no one would get out of bed.
So here's what I wish for everyone out there for 2012!
I hope our lives find balance and when we have trouble finding it on our own that good friends help us navigate our way back.
I hope that everyone gets the mental health treatment they need regardless of cost. And remember a good friend is always around the corner when you need him/her. Sometimes you just have to search a little further and sometimes you never knew who that friend was till the very moment when you needed him/her.
I hope the politicians who decide budgets remember that those who cannot speak for themselves are not invisible.
I hope everyone reading this takes time for themselves and remembers that they are important. Everyone makes a difference in this great world we live in. You matter more than you will ever know.
I hope everyone remembers that the people around you are important too. Using your turn signal, letting that driver in front of you at the exit ramp, picking up litter in the park or holding that door open for the person carrying so much makes a difference. Let your love for other people show. You might just make their day.
When you need a friend, find one. Someone is always close by. They just have to know they are needed. And someday you might just find that you're the one someone needed.
Reach out to a friend in need. And listen, just listen. It is harder than you'd think, but it's more valuable than anything you could buy, borrow or steal.
Goodbye 2011 and Welcome 2012!
Wednesday, November 16, 2011
Things You Should Never Say...
Since things are calming down I figured it was time for a post on the lighter side of things. I use comedy a bit to cope with things. Not that this is a funny situation, but if you don't laugh schizophrenia wins. So here is a list of things I've heard this week that you really should never hear. And some things that should never be said in a psyche ward.
"The doctors will slice and dice you and you have to trust they'll do it right." Overheard sermon from a Pastor who clearly needs a lesson in tact.
"You can't keep your chicken in there! I'll keep it safe right here with me!"
"I'm not responsible for someone from my agency telling you wrong information."
"Are those cops here for me." This one should just never be answered.
"You want the kind of mother who will brush her hair and brush her teeth and I'm just never gonna be that kind of mother. You have to learn to live with that!"
"What kind of meat do you think that is? It looks like turkey, but smells like pork. Why don't you try it?"
"My nipple fell off once. I stuck it back on." I blame my job for walking into that one.
"Remember, if you're going to have sex in a park take your name badge off first."
"Is that Kyle?" "No, it's my mother." "Are you sure?" "Quite."
"I wake up every morning and want to kill myself. That doesn't mean there's a problem, it just means I'm a little bit sad."
"I'll execute this one while you execute that one." This was a police officer referring to filling out two sets of paperwork.
There you have it. Anything you've heard recently that just should never be said?
"The doctors will slice and dice you and you have to trust they'll do it right." Overheard sermon from a Pastor who clearly needs a lesson in tact.
"You can't keep your chicken in there! I'll keep it safe right here with me!"
"I'm not responsible for someone from my agency telling you wrong information."
"Are those cops here for me." This one should just never be answered.
"You want the kind of mother who will brush her hair and brush her teeth and I'm just never gonna be that kind of mother. You have to learn to live with that!"
"What kind of meat do you think that is? It looks like turkey, but smells like pork. Why don't you try it?"
"My nipple fell off once. I stuck it back on." I blame my job for walking into that one.
"Remember, if you're going to have sex in a park take your name badge off first."
"Is that Kyle?" "No, it's my mother." "Are you sure?" "Quite."
"I wake up every morning and want to kill myself. That doesn't mean there's a problem, it just means I'm a little bit sad."
"I'll execute this one while you execute that one." This was a police officer referring to filling out two sets of paperwork.
There you have it. Anything you've heard recently that just should never be said?
Tuesday, November 15, 2011
November 2011 Hospitalization Update
Yesterday I wrote a post about all the things that were happening during this attempt to get my mother the inpatient care she needs. Today thankfully things started moving and she was placed in the Gero Psyche ward at Norfolk General. It's been a long day, but I was so glad to leave her in the capable hands of this hospital.
From start to finish it took 56 hours to have my mother admitted for treatment. And I thought the previous times were bad at 24 hours.
I am still very irritated about how the whole thing played out. I never ever thought I would say this in a million years, but I can't believe how much better the City of Chesapeake is at handling these things that the City of Norfolk. As the Norfolk police officer said "You're not in Kansas anymore." Chesapeake seems efficient and streamlined. Things may be slower than you'd like, but everyone seems to know what's going on. Norfolk was a what I would call a hot mess. No one seemed to know what was really going on or how it should go.
Exhausted from Sunday and Monday's events I fell asleep last night and slept for 13 hours. I headed up to the hospital to spend some time with my mom so she knew we weren't abandoning her. She was receiving psychiatric care in the ER so at least she wasn't floating. But she was pretty angry the doctor put her on a medication she didn't like, Zyprexa. It is the only one that has ever worked for her. The ones she has been on are really hard on the elderly brain so it was either give her Zyprexa and have her be mad or stick with drugs that slowly make it harder and harder for her to function.
I was informed about noon that she was being placed in the Gero Psyche ward. It was after 8pm before she finally got there. In the end she needed to be on Temporary Detainment Order and the Norfolk Police Department had to escort her up the elevator to the ward she is staying in. I have no idea why they have to do it that way. It wasn't that way in Chesapeake, but whatever.
The sad thing is that because of all the uproar with the Norfolk Community Services Board (they paid an employee for years who didn't show up for work because they never bothered to officially fire her) the people who know how to do their jobs have left. Funding has been pulled so that other organizations are not available to help. I've been told that soon the people we worked with this week will all lose their jobs due to budget cuts. Although they were of little help this time and caused a lot of confusion and aggravation I don't believe cutting more funds and getting rid of more people are going to improve an already impossible situation.
People need to wake up and realize that we can't keep going full speed into a brick wall. Something has to give. We either need to raise taxes or just never get sick. I don't think the latter is a possibility. There's no money and people need help.
I watched a homeless man in the hospital desperate to keep his leftover chicken safe so that when he was released he'd have something to eat. This is America! What does that say about us if we let things like that happen? The sad part is he will get some help, maybe lots of help, but soon he'll be living on a park bench again not knowing where his next meal will come from.
When I walked my mom to her room the nurse gave me all the instructions for the ward. Then she asked if our family had a "safe word" we like to use. Yes my mind went there. The first word that popped into my head was a type of animal. My brother said I clearly wasn't up on my secret agent code words. I've been ordered to brush up on my viewing of "Top Secret." I'll have to make time for that tomorrow.
From start to finish it took 56 hours to have my mother admitted for treatment. And I thought the previous times were bad at 24 hours.
I am still very irritated about how the whole thing played out. I never ever thought I would say this in a million years, but I can't believe how much better the City of Chesapeake is at handling these things that the City of Norfolk. As the Norfolk police officer said "You're not in Kansas anymore." Chesapeake seems efficient and streamlined. Things may be slower than you'd like, but everyone seems to know what's going on. Norfolk was a what I would call a hot mess. No one seemed to know what was really going on or how it should go.
Exhausted from Sunday and Monday's events I fell asleep last night and slept for 13 hours. I headed up to the hospital to spend some time with my mom so she knew we weren't abandoning her. She was receiving psychiatric care in the ER so at least she wasn't floating. But she was pretty angry the doctor put her on a medication she didn't like, Zyprexa. It is the only one that has ever worked for her. The ones she has been on are really hard on the elderly brain so it was either give her Zyprexa and have her be mad or stick with drugs that slowly make it harder and harder for her to function.
I was informed about noon that she was being placed in the Gero Psyche ward. It was after 8pm before she finally got there. In the end she needed to be on Temporary Detainment Order and the Norfolk Police Department had to escort her up the elevator to the ward she is staying in. I have no idea why they have to do it that way. It wasn't that way in Chesapeake, but whatever.
The sad thing is that because of all the uproar with the Norfolk Community Services Board (they paid an employee for years who didn't show up for work because they never bothered to officially fire her) the people who know how to do their jobs have left. Funding has been pulled so that other organizations are not available to help. I've been told that soon the people we worked with this week will all lose their jobs due to budget cuts. Although they were of little help this time and caused a lot of confusion and aggravation I don't believe cutting more funds and getting rid of more people are going to improve an already impossible situation.
People need to wake up and realize that we can't keep going full speed into a brick wall. Something has to give. We either need to raise taxes or just never get sick. I don't think the latter is a possibility. There's no money and people need help.
I watched a homeless man in the hospital desperate to keep his leftover chicken safe so that when he was released he'd have something to eat. This is America! What does that say about us if we let things like that happen? The sad part is he will get some help, maybe lots of help, but soon he'll be living on a park bench again not knowing where his next meal will come from.
When I walked my mom to her room the nurse gave me all the instructions for the ward. Then she asked if our family had a "safe word" we like to use. Yes my mind went there. The first word that popped into my head was a type of animal. My brother said I clearly wasn't up on my secret agent code words. I've been ordered to brush up on my viewing of "Top Secret." I'll have to make time for that tomorrow.
Monday, November 14, 2011
Who Really Is the One Who Is Crazy?
My mother has been decompensating over the past two months. Her mental state has been slowly declining and her psychiatrist has said he cannot do anything for her on an outpatient basis. She needs to be hospitalized. So at her appointment we came up with a plan on what to do if her delusions did not improve. It included the old standby of calling Emergency Services of whichever city she is physically in.
Those of you who have been through this process you know that having someone hospitalized for mental health reasons is never an easy process. If things aren't emergent I look at my schedule and figure out a time when I have two full days to devote to just the process of getting her admitted to a hospital.
It's supposed to really go like this.
Contact Emergency Services and explain the situation
Emergency Services comes out and evaluates the patient
Emergency Services decides patient needs to be hospitalized and calls to find a hospital bed that's available
Patient is usually held in an emergency room or magistrate's office until the bed is available
When a bed becomes available the patient is transported by the Sheriff's office to the facility to receive treatment.
But it never works that way. Usually my mother ends up needing to be medically cleared before the mental state can be evaluated. Each time it takes about 24 hours or more to complete this process. It's aggravating and time wasting and down right painful to go through. It usually ends with watching my mother be shackled and put in the back of a police car. Never something you want to see.
This time was more painful than usual. Well, I shouldn't say "was" because it's still ongoing. And we passed the 24 hour mark 7 hours ago.
On Saturday my mother was acting very strange when I visited her so I decided it was time to put her in the hospital. She was saying her doctor and the people who work at the ALS she lives at were trying to kill her. She was whispering to herself and acted clearly confused at what was going on. She wasn't giving the staff any trouble, but I've seen these signs before and I know it will only get worse. I had my kids with me so I couldn't do anything right then. I decided to wait till the next day to start the process. It was also so I could get a good night's sleep before the grueling ordeal begins.
I called on Sunday at noon and was told by the very unsupportive man at the Norfolk CSB that they would come to evaluate my mother, but to not bet they would believe she needs hospitalization. I was told I needed to hurry to her ALS because I'd better be there when they got there. There was no promise of a time frame. I hurried. When I told my mother someone would be coming to evaluate her she gave me this horrible look and gestured to hit me. At 4pm I still had not heard from the NCSB so I called to see what was going on. The woman answering told me that she'd told me several times already that my mother's doctor wouldn't let her go to the hospital. I told her I was sure she was confused as to who I was (I hadn't even given her my mother's name) and it took a bit to convince her that yes, she had confused my mother with another patient. I was informed they were not coming because only the facility could call and invite her in. Of course since the facility didn't witness her behavior if they did call the concern would be dismissed. I informed her that she embodied everything that was wrong with the mental health system in Virginia. It clearly sounded like it wasn't the first time she'd heard that.
So, with no other real option, I drove her to the emergency room at Norfolk General. I was met with a wonderful nursing staff, but a doctor who informed me that for geriatric psyche patients they can only be admitted to a facility 8 to 5 Monday through Friday. This was Sunday. I was told I should take her home. To do what, I have no idea. But I've been around the block a few times and I know that if you go home and come back the next day you only increase the cost and lose your place in line. So I refused. The Norfolk CSB informed me I should not have come and that I should have done it their way (refusing to evaluate her at all is apparently "their way.") I was informed that the CSB worker at the hospital was present during my "many phone calls" and he knows I was told to talk with her doctor first. I must be falling asleep and calling these people because I remember only speaking with them on two occasions and I don't remember them telling me to call her doctor ever being part of the conversation. He said they had a big file on her and then later said they seemed to have no paperwork on her.
We were informed she would be admitted if there was a bed in the morning and we could avoid the temporary detainment order (TDO) which would save a step. Then in the morning we were informed that she would have to be reevaluated and placed under TDO. Seems no one at the Norfolk CSB has any clue. NO wonder I've been told to avoid them at all costs.
Since she has insurance and we have guardianship I asked the doctors if we could just avoid even dealing with the CSB, but it isn't possible. It's the way things are run. And because of budget cuts there are less and less psychiatric beds available and longer wait times in the Emergency Room waiting for one to come up.
So my mother is waiting in the emergency room waiting for a bed. It is 730pm on Monday and this whole ordeal started Sunday at noon. There is no end in sight and the nurse informed me that it would at least be a couple of days. Thankfully the hospital did bring a psychiatrist to see her and changed her meds so it's not like she's floating. But, she also isn't receiving the care she would receive in a psychiatric ward.
There was a man with Alzheimer's Disease waiting in the ER there as well. His wife said they'd been there since Friday evening. At 4pm Monday the hospital was promising him a bed, but it hadn't happened by the time I left.
With the aging population we have more of this to look forward to. God help us all.
Those of you who have been through this process you know that having someone hospitalized for mental health reasons is never an easy process. If things aren't emergent I look at my schedule and figure out a time when I have two full days to devote to just the process of getting her admitted to a hospital.
It's supposed to really go like this.
Contact Emergency Services and explain the situation
Emergency Services comes out and evaluates the patient
Emergency Services decides patient needs to be hospitalized and calls to find a hospital bed that's available
Patient is usually held in an emergency room or magistrate's office until the bed is available
When a bed becomes available the patient is transported by the Sheriff's office to the facility to receive treatment.
But it never works that way. Usually my mother ends up needing to be medically cleared before the mental state can be evaluated. Each time it takes about 24 hours or more to complete this process. It's aggravating and time wasting and down right painful to go through. It usually ends with watching my mother be shackled and put in the back of a police car. Never something you want to see.
This time was more painful than usual. Well, I shouldn't say "was" because it's still ongoing. And we passed the 24 hour mark 7 hours ago.
On Saturday my mother was acting very strange when I visited her so I decided it was time to put her in the hospital. She was saying her doctor and the people who work at the ALS she lives at were trying to kill her. She was whispering to herself and acted clearly confused at what was going on. She wasn't giving the staff any trouble, but I've seen these signs before and I know it will only get worse. I had my kids with me so I couldn't do anything right then. I decided to wait till the next day to start the process. It was also so I could get a good night's sleep before the grueling ordeal begins.
I called on Sunday at noon and was told by the very unsupportive man at the Norfolk CSB that they would come to evaluate my mother, but to not bet they would believe she needs hospitalization. I was told I needed to hurry to her ALS because I'd better be there when they got there. There was no promise of a time frame. I hurried. When I told my mother someone would be coming to evaluate her she gave me this horrible look and gestured to hit me. At 4pm I still had not heard from the NCSB so I called to see what was going on. The woman answering told me that she'd told me several times already that my mother's doctor wouldn't let her go to the hospital. I told her I was sure she was confused as to who I was (I hadn't even given her my mother's name) and it took a bit to convince her that yes, she had confused my mother with another patient. I was informed they were not coming because only the facility could call and invite her in. Of course since the facility didn't witness her behavior if they did call the concern would be dismissed. I informed her that she embodied everything that was wrong with the mental health system in Virginia. It clearly sounded like it wasn't the first time she'd heard that.
So, with no other real option, I drove her to the emergency room at Norfolk General. I was met with a wonderful nursing staff, but a doctor who informed me that for geriatric psyche patients they can only be admitted to a facility 8 to 5 Monday through Friday. This was Sunday. I was told I should take her home. To do what, I have no idea. But I've been around the block a few times and I know that if you go home and come back the next day you only increase the cost and lose your place in line. So I refused. The Norfolk CSB informed me I should not have come and that I should have done it their way (refusing to evaluate her at all is apparently "their way.") I was informed that the CSB worker at the hospital was present during my "many phone calls" and he knows I was told to talk with her doctor first. I must be falling asleep and calling these people because I remember only speaking with them on two occasions and I don't remember them telling me to call her doctor ever being part of the conversation. He said they had a big file on her and then later said they seemed to have no paperwork on her.
We were informed she would be admitted if there was a bed in the morning and we could avoid the temporary detainment order (TDO) which would save a step. Then in the morning we were informed that she would have to be reevaluated and placed under TDO. Seems no one at the Norfolk CSB has any clue. NO wonder I've been told to avoid them at all costs.
Since she has insurance and we have guardianship I asked the doctors if we could just avoid even dealing with the CSB, but it isn't possible. It's the way things are run. And because of budget cuts there are less and less psychiatric beds available and longer wait times in the Emergency Room waiting for one to come up.
So my mother is waiting in the emergency room waiting for a bed. It is 730pm on Monday and this whole ordeal started Sunday at noon. There is no end in sight and the nurse informed me that it would at least be a couple of days. Thankfully the hospital did bring a psychiatrist to see her and changed her meds so it's not like she's floating. But, she also isn't receiving the care she would receive in a psychiatric ward.
There was a man with Alzheimer's Disease waiting in the ER there as well. His wife said they'd been there since Friday evening. At 4pm Monday the hospital was promising him a bed, but it hadn't happened by the time I left.
With the aging population we have more of this to look forward to. God help us all.
Subscribe to:
Posts (Atom)